| NCT ID | NCT02398786 |
| Status | Recruiting |
| Phase | — |
| Sponsor | Myotonic Dystrophy Foundation |
| Condition | Myotonic Dystrophy |
| Study Type | OBSERVATIONAL |
| Enrollment | 3,500 participants |
| Start Date | 2013-02 |
| Primary Completion | 2030-02 |
Eligibility & Interventions
Eligibility Fast-Check
Enter your details for a quick preliminary check. This does not replace medical advice.
What to Expect as a Participant
This is an observational study. You will not receive an experimental treatment; researchers will collect data based on your existing condition or standard treatment.
This trial targets 3,500 participants in total. It began in 2013-02 with a primary completion date of 2030-02.
⚠ This information is for research awareness only. Always consult your physician before joining any clinical trial. Participation is voluntary and you may withdraw at any time.
Brief Summary
The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
Eligibility Criteria
Inclusion Criteria: * Diagnosed with congenital, juvenile-onset or adult onset DM1 or DM2 (confirmed by clinical exam or genetic test) Exclusion Criteria: * Not diagnosed with DM, unaffected family members
Contact & Investigator
Tanya Stevenson, EdD, MPH
STUDY CHAIR
Myotonic Dystrophy Foundation
Frequently Asked Questions
Who can join the NCT02398786 clinical trial?
This trial is open to participants of all sexes, studying Myotonic Dystrophy. Full inclusion and exclusion criteria are listed in the Eligibility Criteria section. Always confirm your eligibility with the research team before applying.
Is NCT02398786 currently recruiting?
Yes, NCT02398786 is actively recruiting participants. Contact the research team at coordinator@myotonicregistry.org for enrollment information.
Where is the NCT02398786 trial being conducted?
This trial is being conducted at Oakland, United States.
Who is sponsoring the NCT02398786 clinical trial?
NCT02398786 is sponsored by Myotonic Dystrophy Foundation. The principal investigator is Tanya Stevenson, EdD, MPH at Myotonic Dystrophy Foundation. The trial plans to enroll 3,500 participants.