The School-Age Children With Cystic Fibrosis and Their Parents on Health Literacy
Trial Parameters
Brief Summary
This randomized controlled experimental study is planned to examine the effect of an online education program provided to school-age children aged 6-11 years diagnosed with cystic fibrosis and their parents on health literacy levels. The study population will consist of 123 school-age children with cystic fibrosis and their parents who are followed at the Cystic Fibrosis Outpatient Clinic of Marmara University Pendik Training and Research Hospital. The study sample will include 104 children and their parents, who will be randomly assigned to either the intervention group (n = 52) or the control group (n = 52). Data will be collected using the Introductory Information Form, the Health Literacy Scale for School-Age Children, and the Turkey Health Literacy Scale-32. Following the pre-test assessments, an online education program developed by the researcher will be delivered to the intervention group. The control group will not receive any additional intervention. Both groups will complete post-test assessments four weeks after the pre-test.
Eligibility Criteria
Inclusion Criteria: Children aged 6-11 years at the time of the study. Children receiving treatment at the Cystic Fibrosis Diagnosis and Treatment Center during the study period. Children able to understand and complete the Health Literacy Scales (no visual, auditory, or cognitive impairments that would prevent scale completion). Children with sufficient proficiency in Turkish to answer the scales. Children and parents who voluntarily agree to participate. Children who have not previously received any health literacy education. Exclusion Criteria: Children with severe visual, auditory, or cognitive impairments that would prevent them from understanding or completing the scales. Children who have already received health literacy education. Children who are outside the age range of 6-11 years. Children not receiving follow-up at the Cystic Fibrosis Diagnosis and Treatment Center during the study period.