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Recruiting Phase 3 NCT06449001

NCT06449001 Study of Danicopan as Add-on Treatment to Ravulizumab or Eculizumab in Pediatric Participants With PNH Who Have Clinically Significant Extravascular Hemolysis

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Clinical Trial Summary
NCT ID NCT06449001
Status Recruiting
Phase Phase 3
Sponsor Alexion Pharmaceuticals, Inc.
Condition Paroxysmal Nocturnal Hemoglobinuria
Study Type INTERVENTIONAL
Enrollment 6 participants
Start Date 2025-08-11
Primary Completion 2027-05-28

Trial Parameters

Condition Paroxysmal Nocturnal Hemoglobinuria
Sponsor Alexion Pharmaceuticals, Inc.
Study Type INTERVENTIONAL
Phase Phase 3
Enrollment 6
Sex ALL
Min Age 12 Years
Max Age 17 Years
Start Date 2025-08-11
Completion 2027-05-28
Interventions
Danicopan

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Brief Summary

The primary objective of this study is to evaluate efficacy of danicopan as add-on treatment to ravulizumab or eculizumab as assessed by hemoglobin (Hgb) change from Baseline at Week 12 in pediatric participants with paroxysmal nocturnal hemoglobinuria (PNH) and clinically significant extravascular hemolysis (CS-EVH).

Eligibility Criteria

Inclusion Criteria: * Confirmed diagnosis of PNH. * CS-EVH defined by: Anemia: Hgb ≤ 11.0 g/dL, and absolute reticulocyte count ≥ 100 × 109/L * Treated with ravulizumab or eculizumab for at least 12 weeks immediately preceding Day 1, the dose received should be stable during this period, and there should be no anticipated changes in dosage or interval during the first 12 weeks of this study. * all participants must be vaccinated against meningococcal infection from serogroups A, C, W, and Y and serogroup B within 3 years prior to, or at least 14 days prior to Day 1 * vaccinated against Haemophilus influenzae type b (Hib) and Streptococcus pneumoniae Exclusion Criteria: * Platelet count \< 30000/μL or there is a need for platelet transfusions. * ANC \< 500/μL. * Clinically significant laboratory abnormalities related to liver function, including: * ALT \> 2 × ULN or ALT \> 3 × ULN for participants with documented liver iron overload defined by serum ferritin values ≥ 500 ng/mL. * Direct

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