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Recruiting NCT06642870
Rare AutoImmune SElf-management Programme Development
Trial Parameters
Condition Systemic Lupus Erthematosus
Sponsor University of the West of England
Study Type OBSERVATIONAL
Phase N/A
Enrollment 360
Sex ALL
Min Age 18 Years
Max Age N/A
Start Date 2024-10
Completion 2025-10
All Conditions
Interventions
Non-interventional study
Brief Summary
The rare autoimmune rheumatic diseases (RAIRDs) are life-long multi-system diseases that are life or organ threatening. RAIRDs can impair quality of life similar to chronic diseases such as heart failure. The aim of the study is to explore content and structure of a support programme for people with RAIRDs in focus groups and survey meetings.
Eligibility Criteria
Inclusion Criteria: 1. Diagnosis of a rare rheumatic condition made by hospital doctor or secondary care: including lupus, systemic vasculitis, myositis, Sjogren syndrome (participant self-report) 2. Ability to give informed consent (with translation support if needed) Exclusion Criteria: \-