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Recruiting NCT03327779

NCT03327779 World Bleeding Disorders Registry

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Plain-language summary for patients
Clinical Trial Summary
NCT ID NCT03327779
Status Recruiting
Phase
Sponsor World Federation of Hemophilia
Condition Hemophilia A
Study Type OBSERVATIONAL
Enrollment 20,000 participants
Start Date 2018-01-26
Primary Completion 2028-01

Eligibility & Interventions

Sex All sexes
Min Age N/A
Max Age N/A
Study Type OBSERVATIONAL

Eligibility Fast-Check

Enter your details for a quick preliminary check. This does not replace medical advice.

What to Expect as a Participant

This is an observational study. You will not receive an experimental treatment; researchers will collect data based on your existing condition or standard treatment.

This trial targets 20,000 participants in total. It began in 2018-01-26 with a primary completion date of 2028-01.

⚠ This information is for research awareness only. Always consult your physician before joining any clinical trial. Participation is voluntary and you may withdraw at any time.

Brief Summary

The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.

Eligibility Criteria

Inclusion Criteria: * Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease Exclusion Criteria: * none

Contact & Investigator

Central Contact

Donna Coffin, M.Sc.

✉ dcoffin@wfh.org

📞 +15148757944

Frequently Asked Questions

Who can join the NCT03327779 clinical trial?

This trial is open to participants of all sexes, studying Hemophilia A. Full inclusion and exclusion criteria are listed in the Eligibility Criteria section. Always confirm your eligibility with the research team before applying.

Is NCT03327779 currently recruiting?

Yes, NCT03327779 is actively recruiting participants. Contact the research team at dcoffin@wfh.org for enrollment information.

Where is the NCT03327779 trial being conducted?

This trial is being conducted at Montreal, Canada.

Who is sponsoring the NCT03327779 clinical trial?

NCT03327779 is sponsored by World Federation of Hemophilia. The trial plans to enroll 20,000 participants.

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