Recruiting NCT05676099

TSC Biosample Repository and Natural History Database

Trial Parameters

Condition Tuberous Sclerosis

Sponsor National Tuberous Sclerosis Association

Study Type OBSERVATIONAL

Phase N/A

Enrollment 5,000

Sex ALL

Min Age N/A

Max Age N/A

Start Date 2016-01

Completion 2050-12

All Conditions

Tuberous Sclerosis Lymphangioleiomyomatosis

Interventions

PhlebotomyBuccal (cheek) swabGenetic Testing

Brief Summary

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

Eligibility Criteria

Inclusion Criteria: * Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM). Exclusion Criteria: \-

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