NCT07786142 Transition of Care in Pediatric Rare Endocrine Disorders
| NCT ID | NCT07786142 |
| Status | Recruiting |
| Phase | — |
| Sponsor | Seoul National University Hospital |
| Condition | Endocrine Disorder |
| Study Type | INTERVENTIONAL |
| Enrollment | 150 participants |
| Start Date | 2026-05-20 |
| Primary Completion | 2028-12-31 |
Eligibility & Interventions
Eligibility Fast-Check
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What to Expect as a Participant
You will actively receive the study intervention — which may be a drug, biologic, device, or procedure.
This trial targets 150 participants in total. It began in 2026-05-20 with a primary completion date of 2028-12-31.
⚠ This information is for research awareness only. Always consult your physician before joining any clinical trial. Participation is voluntary and you may withdraw at any time.
Brief Summary
This study will evaluate the transition from pediatric to adult care in patients with pediatric-onset rare endocrine disorders. The study includes three components: a review of medical records to assess previous transition outcomes, a survey of adult patients about transition experiences and quality of life, and an evaluation of a structured transition program for participants aged 18 years or older. The transition program provides assessment of transition readiness, individualized education, clinical information transfer, coordinated care between pediatric and adult endocrinology teams, and follow-up after transfer. Researchers will evaluate transfer and retention in adult care, transition readiness, quality of life, appointment attendance, satisfaction, and clinical outcomes.
Eligibility Criteria
Inclusion Criteria: * Age 18 years or older. * Diagnosis of a pediatric-onset rare endocrine disorder, including rare metabolic bone and mineral disorders, hypopituitarism, congenital adrenal hyperplasia, rare endocrine tumors, and syndromic or chromosomal disorders requiring endocrine care. * Currently receiving follow-up care in the pediatric endocrinology department of a participating institution. * Willing to participate in the standardized transition-of-care program and able to provide written informed consent. Exclusion Criteria: * none
Contact & Investigator
Yun Jeong Lee
PRINCIPAL INVESTIGATOR
Seoul National University Hospital
Frequently Asked Questions
Who can join the NCT07786142 clinical trial?
This trial is open to participants of all sexes, aged 18 Years or older, studying Endocrine Disorder. Full inclusion and exclusion criteria are listed in the Eligibility Criteria section. Always confirm your eligibility with the research team before applying.
Is NCT07786142 currently recruiting?
Yes, NCT07786142 is actively recruiting participants. Contact the research team at yjlee103@snu.ac.kr for enrollment information.
Where is the NCT07786142 trial being conducted?
This trial is being conducted at Daegu, South Korea, Daegu, South Korea, Daejeon, South Korea, Gwangju, South Korea and 7 additional locations.
Who is sponsoring the NCT07786142 clinical trial?
NCT07786142 is sponsored by Seoul National University Hospital. The principal investigator is Yun Jeong Lee at Seoul National University Hospital. The trial plans to enroll 150 participants.