Trial Parameters
Condition Angelman Syndrome
Sponsor Foundation for Angelman Syndrome Therapeutics, Australia
Study Type OBSERVATIONAL
Phase N/A
Enrollment 5,000
Sex ALL
Min Age N/A
Max Age N/A
Start Date 2016-09-28
Completion 2099-12-31
Interventions
Observational study only
Brief Summary
The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of care for Angelman Syndrome. The registry is currently available in English, Spanish, Traditional Chinese, Italian, Polish, Hindi, and Brazilian Portuguese.
Eligibility Criteria
Inclusion Criteria: * Diagnosis of Angelman Syndrome Exclusion Criteria: \-