| NCT ID | NCT02069756 |
| Status | Recruiting |
| Phase | — |
| Sponsor | The Duchenne Registry |
| Condition | Duchenne Muscular Dystrophy |
| Study Type | OBSERVATIONAL |
| Enrollment | 10,000 participants |
| Start Date | 2007-10 |
| Primary Completion | 2027-10 |
Eligibility & Interventions
Eligibility Fast-Check
Enter your details for a quick preliminary check. This does not replace medical advice.
What to Expect as a Participant
This is an observational study. You will not receive an experimental treatment; researchers will collect data based on your existing condition or standard treatment.
This trial targets 10,000 participants in total. It began in 2007-10 with a primary completion date of 2027-10.
⚠ This information is for research awareness only. Always consult your physician before joining any clinical trial. Participation is voluntary and you may withdraw at any time.
Brief Summary
The Duchenne Registry is an online, patient-report registry for individuals with Duchenne and Becker muscular dystrophy and carrier females. The purpose of the Registry is to connect Duchenne and Becker patients with actively recruiting clinical trials and research studies, and to educate patients and families about Duchenne and Becker care and research. At the same time, The Duchenne Registry is a valuable resource for clinicians and researchers in academia and industry, allowing access to de-identified datasets provided by patients and their families-information that is vital to advances in the care and treatment of Duchenne. The Duchenne Registry is a member of the TREAT-NMD Neuromuscular Network.
Eligibility Criteria
Inclusion Criteria: * Diagnosis of Duchenne or Becker muscular dystrophy; Manifesting female carriers and asymptomatic female carriers also included in registry. Exclusion Criteria: * Diagnosis of any other type of muscular dystrophy (including limb-girdle muscular dystrophy).
Contact & Investigator
Frequently Asked Questions
Who can join the NCT02069756 clinical trial?
This trial is open to participants of all sexes, studying Duchenne Muscular Dystrophy. Full inclusion and exclusion criteria are listed in the Eligibility Criteria section. Always confirm your eligibility with the research team before applying.
Is NCT02069756 currently recruiting?
Yes, NCT02069756 is actively recruiting participants. Contact the research team at coordinator@duchenneregistry.org for enrollment information.
Where is the NCT02069756 trial being conducted?
This trial is being conducted at Washington D.C., United States.
Who is sponsoring the NCT02069756 clinical trial?
NCT02069756 is sponsored by The Duchenne Registry. The trial plans to enroll 10,000 participants.