NCT05910307 Synovial Sarcoma Registry / Biospecimen Repository
| NCT ID | NCT05910307 |
| Status | Recruiting |
| Phase | — |
| Sponsor | Children's Hospital of Philadelphia |
| Condition | Synovial Sarcoma |
| Study Type | OBSERVATIONAL |
| Enrollment | 1,000 participants |
| Start Date | 2023-06-12 |
| Primary Completion | 2028-06 |
Trial Parameters
Eligibility Fast-Check
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Brief Summary
The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.
Eligibility Criteria
Inclusion Criteria: 1. Males or females of any age 2. Reported diagnosis of synovial sarcoma 3. Informed consent from subject (aged ≥18 years) or parent/guardian Exclusion Criteria: 1. Individuals with sarcomas that do not fit the definition of those considered for this registry 2. Individuals who are unwilling to participate 3. Individuals who are unwilling or unable to provide written consent