| NCT ID | NCT06466291 |
| Status | Recruiting |
| Phase | — |
| Sponsor | Asociación Española para el Estudio del Hígado |
| Condition | Wilson Disease |
| Study Type | OBSERVATIONAL |
| Enrollment | 600 participants |
| Start Date | 2021-12-02 |
| Primary Completion | 2030-12 |
Eligibility & Interventions
Eligibility Fast-Check
Enter your details for a quick preliminary check. This does not replace medical advice.
What to Expect as a Participant
This is an observational study. You will not receive an experimental treatment; researchers will collect data based on your existing condition or standard treatment.
This trial targets 600 participants in total. It began in 2021-12-02 with a primary completion date of 2030-12.
⚠ This information is for research awareness only. Always consult your physician before joining any clinical trial. Participation is voluntary and you may withdraw at any time.
Brief Summary
The main objective and purpose of the Registry is to know the current status of Wilson Disease in Spain. As secondary objectives, the prevalence and incidence of the disease will be analysed. Likewise, the analysis aims to define future areas of interest in its pathogenesis, diagnosis, natural history, follow-up, prognosis and treatment. Improving knowledge at a national level can help to design screening strategies and improve diagnostic circuits.
Eligibility Criteria
Inclusion Criteria: * Patients with a confirmed Wilson Disease diagnosis Exclusion Criteria: * Refusal to sign the informed consent for the study
Contact & Investigator
Asociación Española para el Estudio del Hígado Asociación Española para el Estudio del Hígado
✉ registrowilsonaeeh@gmail.com📞 0034915551119
Zoe Mariño
STUDY DIRECTOR
Asociación Española para el Estudio del Hígado
Frequently Asked Questions
Who can join the NCT06466291 clinical trial?
This trial is open to participants of all sexes, aged 18 Years or older, studying Wilson Disease. Full inclusion and exclusion criteria are listed in the Eligibility Criteria section. Always confirm your eligibility with the research team before applying.
Is NCT06466291 currently recruiting?
Yes, NCT06466291 is actively recruiting participants. Contact the research team at registrowilsonaeeh@gmail.com for enrollment information.
Where is the NCT06466291 trial being conducted?
This trial is being conducted at Barcelona, Spain.
Who is sponsoring the NCT06466291 clinical trial?
NCT06466291 is sponsored by Asociación Española para el Estudio del Hígado. The principal investigator is Zoe Mariño at Asociación Española para el Estudio del Hígado. The trial plans to enroll 600 participants.