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Recruiting NCT04134572

Registry of Ollier Disease and Maffucci Syndrome

Trial Parameters

Condition Ollier Disease
Sponsor Luca Sangiorgi
Study Type OBSERVATIONAL
Phase N/A
Enrollment 400
Sex ALL
Min Age N/A
Max Age N/A
Start Date 2017-01-16
Completion 2032-01

Brief Summary

REM is a retrospective and prospective registry, finalized to care and research. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc.. This approach has been individuated in order to corroborate and integrate data from different resources and aspects of the diseases and to correlate genetic background and phenotypic outcomes, in order to better investigate diseases pathophysiology. Due to legal requirements, institutional directives and organizational issues, we are unable to include individuals residing outside Italy in the registry at this time. We are currently engaged in the preparation of a recruitment process for individuals residing outside Italy.

Eligibility Criteria

Inclusion Criteria: * All patients affected by Ollier Disease and Maffucci Syndrome Exclusion Criteria: * Any condition unrelated to Ollier Disease and/or Maffucci Syndrome

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