← Back to Clinical Trials
Recruiting NCT04872179
NCT04872179 International Registry of Patients With Alpha Thalassemia
◆ AI Clinical Summary
Plain-language summary for patients
| NCT ID | NCT04872179 |
| Status | Recruiting |
| Phase | — |
| Sponsor | University of California, San Francisco |
| Condition | Alpha-Thalassemia |
| Study Type | OBSERVATIONAL |
| Enrollment | 500 participants |
| Start Date | 2017-01 |
| Primary Completion | 2027-01 |
Trial Parameters
Condition Alpha-Thalassemia
Sponsor University of California, San Francisco
Study Type OBSERVATIONAL
Phase N/A
Enrollment 500
Sex ALL
Min Age N/A
Max Age N/A
Start Date 2017-01
Completion 2027-01
All Conditions
Eligibility Fast-Check
Enter your details for a quick preliminary check. This does not replace medical advice.
Brief Summary
This is an international prospective registry of patients with Alpha thalassemia to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with Alpha thalassemia.
Eligibility Criteria
Inclusion Criteria: * diagnosis of alpha thalassemia (prenatal or postnatal) with genotype consistent with ATM or BHFS phenotype * referred to the University of California, San Francisco Fetal Treatment Center for fetal diagnosis, management and/or evaluation for the ongoing in utero stem cell transplantation clinical trial Exclusion Criteria: \- none
ClinicalMetric — Independent clinical trial intelligence platform. Not affiliated with NIH, ClinicalTrials.gov, the U.S. FDA, or any pharmaceutical company, hospital, or clinical research organization. Trial data is sourced from ClinicalTrials.gov for informational purposes only and does not constitute medical advice. Do not make any treatment, enrollment, or health decisions based solely on information found here — always consult a qualified healthcare professional. Full Disclaimer · Last Reviewed: April 2026 · Data Methodology