← Back to Clinical Trials
RecruitingNCT05697874

International Rare Brain Tumor Registry

Trial Parameters

ConditionAstroblastoma
SponsorChildren's National Research Institute
Study TypeOBSERVATIONAL
PhaseN/A
Enrollment5,800
SexALL
Min AgeN/A
Max Age45 Years
Start Date2023-01-01
Completion2033-12

Eligibility Fast-Check

Enter your details for a quick preliminary check. This does not replace medical advice.

Brief Summary

The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.

Eligibility Criteria

Inclusion Criteria: * Patients with a known or suspected CNS Sarcoma. * Patients with a known or suspected BCOR-altered brain tumor * Patients with a known or suspected Astroblastoma/NM-1 altered brain tumor * Patients with known or suspected histologically ambiguous/unclassifiable brain tumor * Patients with a known or suspected rare brain tumor. * Signed informed consent by patient/ parent or guardian (assent where applicable) to participate in the study. Exclusion Criteria: * The patient has an extra-CNS primary tumor. * The patient is older than 46 years of age at diagnosis. * The patient or family is not willing to participate or does not sign informed consent.

Related Trials