Trial Parameters
Condition Histiocytosis
Sponsor University of Alabama at Birmingham
Study Type OBSERVATIONAL
Phase N/A
Enrollment 6,000
Sex ALL
Min Age 0 Years
Max Age 89 Years
Start Date 2022-09-01
Completion 2027-07
Brief Summary
The purpose of the study is to describe the burden of chronic health conditions, psychological dysfunction, chronic pain, healthcare utilization, worse health-related quality of life, overall mortality, and cause-specific mortality among individuals with histiocytic disorders
Eligibility Criteria
Inclusion Criteria: * diagnosis of histiocytic disorder at any age 1. Langerhans cell histiocytosis, 2. Erdheim-Chester disease, 3. Rosai-Dorfman disease, 4. Xanthogranuloma, 5. Mixed histiocytosis 6. Malignant histiocytosis (Histiocytic sarcoma, langerhans cell sarcoma, interdigitating cell sarcoma) 7. Hemophagocytic lymphohistiocytosis Exclusion Criteria: * None