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Recruiting NCT06234384
NCT06234384 Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)
◆ AI Clinical Summary
Plain-language summary for patients
| NCT ID | NCT06234384 |
| Status | Recruiting |
| Phase | — |
| Sponsor | Foundation for Sarcoidosis Research |
| Condition | Sarcoidosis |
| Study Type | OBSERVATIONAL |
| Enrollment | 6,833 participants |
| Start Date | 2013-07 |
| Primary Completion | 2033-06 |
Trial Parameters
Condition Sarcoidosis
Sponsor Foundation for Sarcoidosis Research
Study Type OBSERVATIONAL
Phase N/A
Enrollment 6,833
Sex ALL
Min Age 7 Years
Max Age N/A
Start Date 2013-07
Completion 2033-06
Interventions
Sarcoidosis diagnosis
Eligibility Fast-Check
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Brief Summary
The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.
Eligibility Criteria
Inclusion Criteria: 1. English speaking 2. Consent 3. Sarcoidosi diagnosis - Exclusion Criteria: NONE
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