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Recruiting NCT04883905

ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)

Trial Parameters

Condition Acute Hepatic Porphyria
Sponsor Alnylam Pharmaceuticals
Study Type OBSERVATIONAL
Phase N/A
Enrollment 150
Sex ALL
Min Age 12 Years
Max Age N/A
Start Date 2021-04-26
Completion 2027-04-01

Brief Summary

This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.

Eligibility Criteria

Inclusion Criteria: * Documented diagnosis of AHP, per physician's determination Exclusion Criteria: * Currently enrolled in a clinical trial for any investigational agent

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