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Recruiting NCT03845946

NCT03845946 CLOUD-R HAE REGISTRY

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Clinical Trial Summary
NCT ID NCT03845946
Status Recruiting
Phase
Sponsor University Hospital, Grenoble
Condition ANGIOEDEMA
Study Type OBSERVATIONAL
Enrollment 1,000 participants
Start Date 2018-09-01
Primary Completion 2028-09-01

Eligibility & Interventions

Sex All sexes
Min Age N/A
Max Age N/A
Study Type OBSERVATIONAL
Interventions
angioedema

Eligibility Fast-Check

Enter your details for a quick preliminary check. This does not replace medical advice.

What to Expect as a Participant

This is an observational study. You will not receive an experimental treatment; researchers will collect data based on your existing condition or standard treatment.

This trial targets 1,000 participants in total. It began in 2018-09-01 with a primary completion date of 2028-09-01.

⚠ This information is for research awareness only. Always consult your physician before joining any clinical trial. Participation is voluntary and you may withdraw at any time.

Brief Summary

Angioedema is a disease characterized by the appearance of self-limiting edema that last 1-5 days and affect the subcutaneous tissue and/or gastrointestinal and oropharyngeal mucosa. In this last location edema can be lethal causing asphyxia, in all other cases full recovery is complete. Attacks can appear as part of the syndrome urticaria angioedema and can be of allergic origin. But there is a group of non-allergic angioedema that occur without hives and can be either hereditary or acquired. These angioedema are identified in some cases on the basis of etiology, in others are identified by the mediator and an overall classification of these forms of angioedema was published in 2014 as a result of a consent conference organized by the proponents of this registry. Being these forms of angioedema rare, there are not significative case studies inclusive of a high number of patients. This registry aims to collect in a single place a high number of subjects with recurring angioedema and without urticaria.

Eligibility Criteria

Inclusion Criteria: * Any patient with isolated angioedema without associated wheals. * Patients with hereditary angioedema with or without C1 deficiency. * Major patient with consent (signature) * Minor patient whose parents / legal guardians have given their consent (signature) Exclusion Criteria: * Patient unable to give consent. * Wheals with angioedema

Contact & Investigator

Central Contact

laurence bouilelt, MD, PhD

✉ lbouillet@chu-grenoble.fr

📞 +33476765565

Principal Investigator

laurence bouillet

PRINCIPAL INVESTIGATOR

University Hospital, Grenoble

Frequently Asked Questions

Who can join the NCT03845946 clinical trial?

This trial is open to participants of all sexes, studying ANGIOEDEMA. Full inclusion and exclusion criteria are listed in the Eligibility Criteria section. Always confirm your eligibility with the research team before applying.

Is NCT03845946 currently recruiting?

Yes, NCT03845946 is actively recruiting participants. Contact the research team at lbouillet@chu-grenoble.fr for enrollment information.

Where is the NCT03845946 trial being conducted?

This trial is being conducted at Grenoble, France.

Who is sponsoring the NCT03845946 clinical trial?

NCT03845946 is sponsored by University Hospital, Grenoble. The principal investigator is laurence bouillet at University Hospital, Grenoble. The trial plans to enroll 1,000 participants.

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