← Back to Clinical Trials
Recruiting NCT03489278

NCT03489278 Clinical Procedures to Support Research in ALS

◆ AI Clinical Summary
Plain-language summary for patients
Clinical Trial Summary
NCT ID NCT03489278
Status Recruiting
Phase
Sponsor University of Miami
Condition Amyotrophic Lateral Sclerosis
Study Type OBSERVATIONAL
Enrollment 1,200 participants
Start Date 2018-02-15
Primary Completion 2032-06

Eligibility & Interventions

Sex All sexes
Min Age 18 Years
Max Age N/A
Study Type OBSERVATIONAL

Eligibility Fast-Check

Enter your details for a quick preliminary check. This does not replace medical advice.

What to Expect as a Participant

This is an observational study. You will not receive an experimental treatment; researchers will collect data based on your existing condition or standard treatment.

This trial targets 1,200 participants in total. It began in 2018-02-15 with a primary completion date of 2032-06.

⚠ This information is for research awareness only. Always consult your physician before joining any clinical trial. Participation is voluntary and you may withdraw at any time.

Brief Summary

The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.

Eligibility Criteria

Inclusion Criteria: * Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy). * Receiving care at a clinical center that uses Epic as its EHR. * Able and willing to provide informed consent (or informed consent obtainable from a designated proxy). Exclusion Criteria: * Inability to understand English and/or Spanish

Contact & Investigator

Central Contact

Michael Benatar, MBChB, MS, DPhil

✉ projectcreate@miami.edu

📞 1-844-837-1031

Principal Investigator

Michael Benatar, MBChB, MS, DPhil

PRINCIPAL INVESTIGATOR

University of Miami

Frequently Asked Questions

Who can join the NCT03489278 clinical trial?

This trial is open to participants of all sexes, aged 18 Years or older, studying Amyotrophic Lateral Sclerosis. Full inclusion and exclusion criteria are listed in the Eligibility Criteria section. Always confirm your eligibility with the research team before applying.

Is NCT03489278 currently recruiting?

Yes, NCT03489278 is actively recruiting participants. Contact the research team at projectcreate@miami.edu for enrollment information.

Where is the NCT03489278 trial being conducted?

This trial is being conducted at Irvine, United States, Palo Alto, United States, San Francisco, United States, Miami, United States and 7 additional locations.

Who is sponsoring the NCT03489278 clinical trial?

NCT03489278 is sponsored by University of Miami. The principal investigator is Michael Benatar, MBChB, MS, DPhil at University of Miami. The trial plans to enroll 1,200 participants.

Related Trials

Related Intelligence Guides

In-depth guides covering this condition's trials, eligibility, and what to expect.

ClinicalMetric — Independent clinical trial intelligence platform. Not affiliated with NIH, ClinicalTrials.gov, the U.S. FDA, or any pharmaceutical company, hospital, or clinical research organization. Trial data is sourced from ClinicalTrials.gov for informational purposes only and does not constitute medical advice. Do not make any treatment, enrollment, or health decisions based solely on information found here — always consult a qualified healthcare professional. Full Disclaimer  ·  Last Reviewed: April 2026  ·  Data Methodology