| NCT ID | NCT05231876 |
| Status | Recruiting |
| Phase | — |
| Sponsor | Fondation Ophtalmologique Adolphe de Rothschild |
| Condition | Wilson Disease |
| Study Type | OBSERVATIONAL |
| Enrollment | 1,000 participants |
| Start Date | 2005-01-01 |
| Primary Completion | 2030-01-01 |
Eligibility & Interventions
Eligibility Fast-Check
Enter your details for a quick preliminary check. This does not replace medical advice.
What to Expect as a Participant
This is an observational study. You will not receive an experimental treatment; researchers will collect data based on your existing condition or standard treatment.
This trial targets 1,000 participants in total. It began in 2005-01-01 with a primary completion date of 2030-01-01.
⚠ This information is for research awareness only. Always consult your physician before joining any clinical trial. Participation is voluntary and you may withdraw at any time.
Brief Summary
This registry concerns adults and children with Wilson's disease. The collection of a large amount of data will allow a better understanding of the epidemiology of this rare disease, in particular the age of onset according to the hepatic or hepato-neurological forms, but also the geographical distribution of patients consulting in France. This database will also make it possible to know all the therapies prescribed to "Wilsonian" patients. The genetic study of these patients will make it possible to specify the various genetic mutations involved in Wilson's disease. The information (clinical, biological, radiological and genetic) relating to the disease will be entered by a doctor or a professional specialising in Wilson's disease.
Eligibility Criteria
Inclusion Criteria: * All patients suffering from Wilson disease Exclusion Criteria: * Lack of written consent from the patient or their legal representative
Contact & Investigator
Frequently Asked Questions
Who can join the NCT05231876 clinical trial?
This trial is open to participants of all sexes, aged 0 Years or older, up to 99 Years, studying Wilson Disease. Full inclusion and exclusion criteria are listed in the Eligibility Criteria section. Always confirm your eligibility with the research team before applying.
Is NCT05231876 currently recruiting?
Yes, NCT05231876 is actively recruiting participants. Contact the research team at apoujois@for.paris for enrollment information.
Where is the NCT05231876 trial being conducted?
This trial is being conducted at Paris, France.
Who is sponsoring the NCT05231876 clinical trial?
NCT05231876 is sponsored by Fondation Ophtalmologique Adolphe de Rothschild. The trial plans to enroll 1,000 participants.